Write to your MP

Ask your MP to end the follow-up postcode lottery for children born prematurely

Supporting children born prematurely and their families following the trauma of neonatal intensive care isn’t a “nice to have” – it’s essential.

The Smallest Things has been busy in Parliament, speaking with policy makers, third sector leaders, health professionals, and crucially sharing the voices of children and families. We are calling for more support and understanding within universal services for neonatal families, and for an end to the postcode lottery in neonatal neurodevelopment follow-up.

Just 6% of units provide the recommended four-year follow-up

NICE guidance is clear: children born prematurely should have a follow-up appointment when they are two, and babies born before 28 weeks should receive extra developmental check-ups when they turn four. These appointments are really important – they help spot emerging needs early, especially before starting school. But right now, two-year checks are inconsistent, and just 6% of neonatal units currently offer the recommended four-year assessment.

We are on a mission to make sure that every child born prematurely receives the right support at the right time - not just in the weeks and months after leaving hospital - but right throughout their childhood. 

Can you write to your MP using this template letter (or writing your own) to ask them to end the neonatal follow-up postcode lottery. Don’t forget to email us to let us know when you get a reply!

Meet your MP

Using your own story to advocate for these changes can help us to make a real difference. 

Meeting with your MP gives you a chance to directly share your experiences and concerns with the person who represents you in Parliament. It can turn personal stories into political action, helping shape the questions they ask, the issues they raise, and the changes they push for on your behalf. 

You can use our ‘How to engage with your MP’ resource pack, with hints and tips for writing to your MP and how to make the most of your meeting.

How to find your MP or Representative

You can find your Member of Parliament by searching using your postcode on the parliament website.

If you live in Scotland, Wales, or Northern Ireland, topics including health and education are the responsibility of the national parliament or assembly where you live. Your Representative won’t be able to take up issues in Westminster that are devolved to your national parliament or assembly, but they can still help you understand who the right person to speak to is and can help you get your voice heard.  

If you live in Wales, Scotland or Northern Ireland you can find out who represents you in Westminster and your national parliament here.