This year we’ve published blogs on just about all aspects of having a premature baby in neonatal intensive care – take a look at our most read blogs this year!
At least you can go home and get a good night sleep” – firstly, you don’t want to go home; going home means you have to leave your baby. Secondly – a good night sleep! Mothers of premature babies express milk every three hours to enable their babies to have breast milk via a naso-gastric feeding tube. The expressing routine is akin to the routine of feeding a new born baby, only you don’t have your baby with you, no babies cry at night to wake you to feed, just your alarm telling you its time to get up and express again. [Read full post here]
How do you share these experiences with other new mums? There really is no comparrion in our journeys. When you do describe some of your time in neonatal care that invariably leads to questions; sometimes well-meaning, but often insensitive questions – “Is your baby normal now?” is a question that has stayed with me as well as the assistant in a well know department store who shouted across the shop, beckoning her colleague to “come and have a look at this preemie baby!”… [Read full post here]
From the day I felt more confident to take Luca out (around his due date), I’ve faced a constant stream of people trying to touch my baby or asking personal questions. For some reason, a teeny baby seems to be public property. [Read full post here]
People often speak about the things they miss through premature birth and describe a sense of loss. I grieved for my final trimester for a long time after birth and for all that entailed.
1. Lost – No time to decorate the nursery
2. I hadn’t even thought about packing a hospital bag…. [Read full post here]
And the most read post in 2016…
1. PTSD: The Hidden Cost of NICU
NICU remains a mysterious and unknown place to those who have not lived it and for that reason perhaps it isn’t immediately obvious to see a link between time in NICU and PTSD. Raising awareness and speaking honestly about our experience and the true realities of neonatal care is therefore crucial:
Of the uncertainly and unknown. The panic that sets in when your baby is not in their incubator space when you arrive, have they been moved – is the news good of bad?
Of the physical pain at having to leave your new born everyday. The feelings of emptiness and loss.
Of the ups and downs; the lines, wires, monitors and alarms.
Of the hot, close, claustrophobic environment.
The security buzzers at the entrance and of the constant rigorous hand washing.
Feeling watched as you attend to the simplest of cares such as changing a nappy – of struggling with the simplest of cares such as changing a nappy!
And the feelings of guilt, jealousy, grief and loss that go hand-in-hand and in stark contrast to the feelings of joy, anticipation and hope.
I will always be a NICU mum; and PTSD will always be lurking around the corner.
PTSD: The Hidden Cost of NICU [Read the full post here]
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