Why Don’t We Speak About Premature Birth?

My baby was born 10 weeks premature. 
He spent 8 weeks in neonatal intensive care and I spent 8 weeks visiting him each day in hospital. It was tough.

If you follow The Smallest Things you probably already know that – I write about our journey quite often! But I didn’t always speak about our experiences. Indeed after neonatal care I rarely spoke about our days there at all.

Leaving the safety of the hospital I became quite isolated. 

Family and friends with good intention thought the difficult times were behind us and meeting new mothers only exacerbated the feelings of loss, jealousy and grief. My journey had been so different, how could I relate to new mothers discussing the things new mums discuss. “I literally couldn’t put my baby down” one mum said, “she would only settle if she was was on me”. “Mine fed constantly from 7pm – 3am for weeks” said another and “My husband thinks I should go out, but I don’t think I can leave my baby yet”.

I waited 6 days to be able to hold my baby for the first time. I had no choice, I left my son, going home without him, on the very day he was born. My son was not attached to me in those early weeks, instead he was attached to monitors, lines and wires.

Our feeding routine was scheduled on a hospital chat, no evening or late night cluster feeds for us. Instead I’d set my alarm, waking up during the night to express milk. You can spot a NICU mum in the hospital. She’s the one waiting by the lifts in the morning with a freezer bag. No, not her lunchtime sandwiches, but bottles or syringes of milk – perahps the one thing that in this strange world allows her to be mum.

How do you share these experiences with other new mums? There really is no comparrion in our journeys. When you do describe some of your time in neonatal care that invariably leads to questions; sometimes well-meaning, but often insensitive questions – “Is your baby normal now?” is a question that has stayed with me as well as the assistant in a well know department store who shouted across the shop, beckoning her colleague to “come and have a look at this preemie baby!”

You try to protect yourself. Speaking about your experiences can be painful – it’s best to move on, right?

Only you can’t move on, not in those early weeks and months. The days of NICU have framed who you are as a mother and the shock and uncertainly of premature birth can be long lasting.

Feelings of anger, guilt, loss or jealously can overwhelm you and the slightest cough or cold can terrify you. Bonding with a baby who for weeks or months belonged to the hospital can be hard and the sound of beeping machines can stop you in your tracks. You wonder what is wrong with you – it’s not normal to feel like this, is it?

You stay quiet.

You can’t talk to the others mums, they wouldn’t understand. You’ve started to avoid the health visitor because you’re worried you will break down if you have to explain to them again that your baby isn’t smiling because they’ve not yet reached their due date. And you don’t want to worry your partner because you know they are trying to stay strong too. You begin to feel like a terrible mother, struggling to bond with such a precious baby.

So, we don’t talk about it.

And because we don’t talk about it we don’t realise that our feelings are 100% normal. We don’t realise that following neonatal intensive care these feeling are common amongst NICU parents.

It wasn’t until Samuel turned three that I felt strong enough to speak about our journey – a journey that five years on still continues. Through our stories I find comfort that I am not alone and that there are mums and dad’s who understand. I will continue to speak about our journey, through NICU and beyond, raising awareness amongst professionals and parents alike so that families can receive the understand and support they need.

For more information about our journey you may like to read – NICU and my PTSD, Our Story and Lost in a Medical World I Once Knew.
The Smallest Things is campaigning to extend maternity leave for mothers of premature babies – have you signed our petition?

Like what you’ve read? Would like to help us raise awareness of premature birth? Then click on the Facebook and Twitter buttons and SHARE!


2 thoughts on “Why Don’t We Speak About Premature Birth?

  1. Carlene

    I am so glad you wrote about this. Yes the experience did make me feel incredibly isolated. I only managed one mother-baby group as I was so jealous. I never managed to successfully breastfeed and I too took ages to bond. I was robbed of the end of the pregnancy, holding and then bringing home a new baby. I remember becoming aware that there must be other things I was unaware of and wondered I’d unknowingly made insensitive comments about other things. And I began the process of losing any sense that the world was predictable.


  2. Sarah Huburn

    Untill it happrned to me , I was blind. Had a premature birth in my second pregnancy at 29 weeks. I’ve never being so scared, everything was out of my control. Our lives were in someone elses hand. my baby was dying. Thankfully she lives. She’s 2 years old with ongoing problems due to premature birth



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