Nothing can quite prepare you for parenthood, but for parents of premature babies the planning and expectation of a new arrival is dramatically interrupted.
When my first son was born 10 weeks early we were thrown into a world of micro-nappies, beeping machines, alarms, breathing tubes, feeding tubes, expressing pumps, portholes, picc lines and rigorous hand washing.
As an occupational therapist in the NHS I had worked in a large neonatal intensive care unit; I was used to handling tiny babies, their tubes, lines and machines, but as a parent I was lost in a bizarre medical word where we would wait day after day to hold our baby.
Whether you are a parent, healthcare professional or know someone with a premature baby, I hope you find this site useful and I invite you to support the campaign to;
- Raise awareness and understanding around premature birth
- Support the BLISS campaign to extend maternity leave and statuary maternity pay for parents of premature babies
- Campaign for better follow-up care for parents
- Provide advice for family and friends